udtryk??

[swert]

hej alle

da jeg er ny her på siden er der nogle udtryk jeg ikke forstår.
Liberated = er det bare ccsvi-operationen
EDSS (og et tal) = hvad står det for?

kh janet

[Nina Ansbjørn]

Hej Janet,

Liberated betyder, at man har fået foretaget "the liberation treatment". The liberation treatment er indgrebet man får foretaget, hvis man lider af CCSVI - altså forsnævrede m.m. vener.

EDSS står for Expanded Disability Status Scale

Tallene står for hvor hårdt ramt man er.

1 til 4,5 er vist nok betegnet som værende mobil, altså kan gå selv uden hjælpemidler, og 5 til 10 er så det modsatte. Men nogen herinde kan garantere fortælle dig det helt præcist. Jeg tog bare en goggle search af EDSS

Kh Nina

[helleho]

Hej Janet - her er EDSS skalaen, godt nok på engelsk 

0 No found symptoms by neurological examination
 1 No disability, minimal signs in one FS (Functional System)
 1.5 No disability, minimal signs in more than one FS
 2 Minimal disability in one FS
 2.5 Mild disability in one FS or minimal disability in two FS
 3 Moderate disability in one FS, or mild disability in three or four FS. Fully ambulatory
 3.5 Fully ambulatory but with moderate disability in one FS and more than minimal disability in several others
 4 Fully ambulatory without aid, self-sufficient, up and about some 12 hours a day despite relatively severe disability; able to walk without aid or rest at least 500 meters
 4.5 Fully ambulatory without aid, up and about much of the day, able to work a full day, may otherwise have some limitation of full activity or require minimal assistance; characterized by relatively severe disability; able to walk without aid or rest some 300 meters
 5 Ambulatory without aid or rest for about 200 meters; disability severe enough to impair full daily activities (work a full day without special provisions)
 5.5 Ambulatory without aid or rest for about 100 meters; disability severe enough to preclude full daily activities
 6 Intermittent or unilateral constant assistance (cane, crutch, brace) required to walk about 100 meters with or without resting
 6.5 Constant bilateral assistance (canes, crutches, braces) required to walk about 20 meters without resting
 7 Unable to walk beyond approximately five meters even with aid, essentially restricted to wheelchair; wheels self in standard wheelchair and transfers alone; up and about in wheelchair some 12 hours a day
 7.5 Unable to take more than a few steps; restricted to wheelchair; may need aid in transfer; wheels self but cannot carry on in standard wheelchair a full day; may require motorized wheelchair
 8 Essentially restricted to bed or chair or perambulated in wheelchair, but may be out of bed itself much of the day; retains many self-care functions; generally has effective use of arms
 8.5 Essentially restricted to bed much of day; has some effective use of arms retains some self care functions
 9 Confined to bed; can still communicate and eat
 9.5 Totally helpless bed patient; unable to communicate effectively or eat/swallow
 10 Death due to MS

vh Helle

[Lis]

Hej herinde!

Jeg har ikke helt glemt jer på MS-Forum, - men jeg har simpelthen ikke tid.


Liberation er et ganske rædselsfuldt navn at give en operation, - ordet skurrer i alle professionelles ører.

Og for os, der er gamle nok, henleder det tanken på kvindefrigørelsen i 1970'erne.

Man bliver jo heller ikke liberated fra en betændt blindtarm, vel?


Den indvendige undersøgelse af venerne hedder: Angiografi

Ballonudvidelsen hedder: Angioplastik - med tryk på sidste stavelse "stik".

Jeg personligt bruger ikke ordet liberation eller liberated - men siger CCSVI-procedure eller de korrekte benævnelser.


De bedste hilsner

Lis
New Delhi